MARCH 16, 2020







Introducing the First-Ever Digital Lupus Advocacy Summit

The nation's largest lupus advocacy event is going digital – and getting even bigger! At the first-ever Digital Summit, attendees will learn from experts in the field about the latest in lupus research, connect with hundreds of fellow lupus advocates, and urge their members of Congress to join our fight and support policies to improve the lives of all people affected by lupus. All of this, and much more, will take place in an immersive, experiential, online environment.

Join us on Monday, March 16 in the Auditorium to learn from the leading experts in lupus research about the latest breakthroughs and those soon to come. You'll also get trained to advocate for the entire lupus community throughout the year, and prepared to engage your members of Congress to urge them to join our fight.

In between sessions, take a walk through the Exhibit Hall and connect with our partners in the fight against lupus. After you have heard about their efforts, stop by the Foundation's booths to learn about our many programs, services, and resources.

Finally, don't forget to stop by the networking lounge to connect with your fellow advocates!

The 2020 Digital Lupus Advocacy Summit is open to the entire lupus community. We are so excited to be able to offer this opportunity free of charge, and hope you will join us for a monumental day in the fight against lupus.


All Day

10:00 AM

Environment Open

Access: ALL


11:00 AM - 12:30 PM

Today & Tomorrow in Lupus Research

Access: ALL
Leslie Hanrahan (Moderator) Lupus Foundation of America
Robert Huizinga, Ph.D, RN, CNeph(C) Aurinia Pharmaceuticals
Micki Hultquist, MS AstraZeneca
Joan T. Merrill, MD Oklahoma Medical Research Foundation
Jaime Miller, MD, Ph.D Lupus Warrior
11:15 AM - 12:30 PM

Youth Congress Session 1: Research

Access: 21 and Under
Vincent Del Gaizo Childhood Arthritis and Rheumatology Research Alliance
12:30 PM - 12:45 PM


12:45 PM - 1:45 PM

Meet the Lupus Researchers

Access: ALL
May Choi, MD, FRCPC University of Calgary
Gary Gilkeson, MD Medical University of South Carolina
12:45 PM - 1:45 PM

Youth Congress Session 2: Creative

Access: 21 and Under
Alisha Ladenburg Lupus Foundation of America
Kym Norris Lupus Foundation of America
Michael Philip Lupus Foundation of America
1:45 PM - 2:15 PM


2:15 PM - 3:00 PM

Navigating the Healthcare System

Access: ALL
Ashley Holden Lupus Foundation of America
Pat Wildman Lupus Foundation of America
2:15 PM - 3:00 PM

Youth Congress Session 3: Advocacy

Access: 21 and Under
Jason Harris Lupus Foundation of America
Travis Smith Lupus Foundation of America
3:00 PM - 3:05 PM


3:05 PM - 3:45 PM

Advocacy x 365

Access: ALL
Advocacy & Government Relations Team Lupus Foundation of America
3:45 PM - 4:00 PM


4:00 PM - 5:15 PM

Storytelling & Preparing for Capitol Hill

Advocacy & Government Relations Team Lupus Foundation of America

If you have questions about the 2020 Digital National Lupus Advocacy Summit, please review our FAQs page, or contact Travis Smith.